“My husband and I have an 8 year old daughter who longed to be a big sister and we knew our hearts were ready for another child. We were overjoyed when we learned our family would be growing, and the excitement continued when we learned we were having a boy. We planned showers and the nursery and was determined to make everything PERFECT!
Until at 25 weeks things became not so perfect, as my body went into labor. We rushed to the hospital and learned we would soon be having our preemie baby. The neonatologist came to talk to us about what to expect, and what our stay looked like, and survival odds. It was overwhelming and terrifying but that conversation really prepared us for our NICU journey.
Mason was born via c-section at exactly 26 weeks weighing 1 pound 11.2 ounces and came out ready to fight! At 4 days old he became gravely ill, and we feared we were going to lose our baby, but God was not done with Mason and Mason was not done fighting. It was a hard fight for a few days but we made it through it with a lot of prayers and by the Grace of God. His sickness did cause a grade 4 brain bleed and hydrocephalus which has required two surgeries during our stay. He has overcome so many obstacles and continues to amaze us with his strength.
We have been in the NICU for 80 days, currently just transitioned to special care, learning how to feed and we will soon be heading home. My advice for any parent that is having to walk this NICU journey is to first realize it is a long road, BUT this is only temporary.
There are scary times, frustrating times, and joyous times. Take them all in. Every small victory, celebrate it! Your firsts with your baby will be a lot different than other moms with newborns. You will celebrate a day without bradycardias, no more PICC line, less respiratory support, or a good head ultrasound. No, it’s not the normal excitement you plan for as a mom, but it’s your new normal and it will be just as exciting as hearing your baby coo for the first time!
Embrace the rollercoaster. It won’t be long until you are home with your little miracle and this fight and this journey will remind you of yours and your baby’s strength!”
